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I have noticed that people are now kindly responding to others with suggestions of names of local doctors, how to get help, etc. This fills me with joy! I am delighted that Amy Hermon-Taylor wrote in, and gave links to her father's amazing research on a vaccine against Crohn's. I was very interested to read the letter from Lillian and Donald Lurye, giving the name and number of a doctor who was familiar with MAP and helped their son.
It would please me no end if this blog becomes a community, a place where people actually talk to each other about how to get help with Crohn's.
I will, however, delete any postings that are advertisements for particulaer doctors, potions, remedies, or products of commercial value. I will not allow the blog to become a market place.
In addition, a woman wrote to me about her son who is very ill and asked, what would I do as a mother in a case of last resort? What would I do as a mother if my son had severe CD with complications, and I could not find a doctor in the US or Canada? The answer is pretty clear: I would get an appointment with Dr. Borody in Australia and go immediately. I would plan to stay in Australia for a while, for Borody to figure out the problems. I might even allow an adult child to stay in Australia until the remission was durable.
I know that this answer is frustrating, because it is hard to get an appointment and expensive to travel so far. But that is my answer. If it were my sick child, I would somehow find the money and go directly to Australia!
